April 27, 2026 · Neurourology and urodynamics · DOI: 10.1002/nau.70298

Social Media as a Source of Information on Interstitial Cystitis/Bladder Pain Syndrome: Support Tool or Misinformation?

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This study aimed to identify which social media platforms are most utilized by women with interstitial cystitis/bladder pain syndrome and to evaluate the scientific reliability of the information shared on these platforms. The analysis revealed that while Instagram is primarily used by healthcare professionals for awareness, Facebook serves as a patient-driven forum for discussion, with a significant portion of posts lacking scientific accuracy. The findings highlight the necessity for healthcare professionals to enhance their online presence to combat misinformation and provide reliable support for individuals seeking information about bladder pain.

Marilena Gubbiotti, Chiara Gilli, Laura Pelizzari, Luisa De Palma, Emanuele Rubilotta, Stefano Rosadi

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