March 18, 2026 · Journal of palliative medicine · DOI: 10.1177/10966218261433448

The Qualitative Impact of Incorporating Photo-Narratives into the Care of Children with Severe Neurological Impairment: Parent and Clinician Perspectives

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This study investigates the impact of incorporating photo-narratives into the care of children with severe neurological impairment (SNI) from the perspectives of parents and clinicians. The authors aim to understand how these visual narratives can enhance communication and understanding of the child's quality of life in a hospital setting. Findings suggest that photo-narratives can shift clinician perspectives and promote more humanistic care by providing deeper insights into the child's experiences and needs.

Ellie Oslin, Nell E Baumgarten, Elizabeth Julian, Annie McDermott, Jori Bogetz

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