Better Guidelines, Better Patient Lives: A Sustainable Partnership Model for Integrating Lived Experience into Clinical Guideline Development

The authors advocate for the systematic integration of lived experience from patients and caregivers into clinical guideline development to enhance relevance and implementation. They propose a structured dual framework, including a Patient and Public Engagement Policy and a Talent Pipeline for Lived Experience, to cultivate this expertise as a professional competency throughout the guideline process. The paper outlines a phased implementation plan aimed at promoting equity and improving health outcomes in kidney care, while also being adaptable for other guideline bodies.